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Ethics in research and clinical translation

Ethical, legal, and societal considerations are embedded within ABCD-J’s research, technology, and translation to clinical practice. This includes the development of trustworthy technologies and machine learning methods, the design of clinically relevant tools and workflows, and the governance and stakeholder engagement required in data-driven research environments. These efforts ensure that scientific innovations are aligned with societal values, clinical needs, and responsible technology development.

Ethics and law in ABCD-J is an integral part of research and technology development, shaping the design and governance of ABCD-J’s data infrastructures. Principals such as privacy-by-design, transparent consent models, and responsible data management and use are embedded from the outset, supporting trustworthy and sustainable research.

These questions are particularly relevant in clinical contexts, where data-driven evidence and patient and physician perspectives must be integrated into decision-making. ABCD-J therefore follows a participatory approach that actively involves clinicians and patients, ensuring that new methods are rigorously evaluated, ethically deployed, and aligned with clinical practice.